Life hasn’t slowed down since the benefit. I was hoping to get this blog written three weeks ago but life has a way of happening. Brock and I were once again overwhelmed by the support and turn out for the benefit. It is a humbling experience to be surrounded by people who genuinely care about Kate and want to help with her care and finding a cure. Thank you to everyone who came, helped, donated, etc. I wish we could thank you all personally and convey just how thankful we are for your support, prayers, kind thoughts and word and interest in Kate. I know everyone is just as busy as us and dealing with their own health, finance, etc. issues, so the fact that you think about Kate and our family means the world to us. We are forever thankful and grateful.
THANK YOU, THANK YOU, THANK YOU.
Thank you to Kaye, Kyle, Jackie, Dale and Crystal! You all are amazing and selfless!!!
Kate is still doing well for the most part. We have an appointment next week to get her fitted for a stander. We are excited about getting a new one for Kate. PT Services allowed us to use one of their standers for the last few years, but Kate has outgrown it. It is so important for Kate to stand to keep her bones strong and work her muscles.
I took Kate to a new mobility company and asked them to look at her wheelchair. We didn’t like how she sat in her chair and felt like it didn’t provide the support she needed. The way she was sitting was allowing her scoliosis to get worse. I was VERY impressed by the new company. The guy who saw Kate is specialized in pediatric. I explained my concerns and frustrations. He listened and adjusted her chair. She is now sitting straight and looks comfortable. In order to support her the way she needs to be supported the sides of her chair are tight but it doesn’t seem to bother her. Her breathing is better and her head doesn’t flop around anymore when she is in her chair. I cant express how amazing it felt to see her sitting straight, comfortable and stable. Such a blessing!!
Kate has a cold, which has caused congestion and achiness. Luckily nasal spray, Vicks vapor rub, Advil and a humidifier have been keeping her comfortable. Since she cant use decongestions like Sudafed it is hard to treat her symptoms but she is dealing with it like a champ! Today she seems better, which we are so thankful for! I am becoming a believer in putting Vicks on her feet at night; it seems to open up her nasal passages and help her breath.
Today was a rough day for me. I have been going through pictures of Kate for an event I am speaking at in a few weeks. The pictures will be part of slide show that plays before I talk. I have been putting this off for a month or two. I never look at pictures of Kate; it’s just too painful. When I look at the pictures I see the life in her eyes and the dreams we had for her future; dreams that may never come true. I see a life that was simple, easy, and carefree. I remember her laugh, her voice, her silly personality and wonder what could have been. Life is easier when I don’t look back. Looking back reminds me of what we have lost. The day-to-day routine is easier to deal with when I don’t think of what we have lost, but rather, what we have been able to hold onto, like her smile, her sense of humor, her loving spirit. We have so much to be thankful for so I hate to waste a minute crying about what could have been, what was, etc. I allowed myself a few moments to mourn the losses. After a few minutes I asked God to take the pain and bring me peace. Just as quickly as I asked I received the peace. So thankful for His peace and mercies, they keep us strong, focused and full of peace and happiness.
Lauren has been busy with volleyball the last few months. She has practice twice a week and games on Saturday. It has been a lot of fun watching Lauren play volleyball and seeing her improve. You can see in her eyes how much she loves the sport. We love what it has done for her self-confidence. She seems happier. This weekend she has a tournament in Bluffton and that will wrap up the season. While I will enjoy sitting in my PJs on Saturday mornings I will miss watching her play. I think Kate enjoys the games as well – the yelling and clapping!
There are several children who are fighting hard right now and need your prayers, please. They are Sophia (breathing issues), Jake (pneumonia), William (pain, seizures), Tatyana (breathing issues, seizures), Olivia (hives), and Mackenzie (pneumonia). Also, Olivias grandmother has shingles and could use all the prayers she can get to help w/ healing and pain. Our Pastor, Nathan, lost his father this weekend unexpectedly. Please keep him and his family in prayer (wife, 3 kids, siblings, etc). Thank you all for your prayers!!!!